In 2018 Jack was diagnosed with FOP at 12 Years of age. His diagnosis robbed Jack of playing sports and other adventurous activities that often define a childhood. This included his love of playing competitive cricket. Jack was advised to no longer play cricket as even a minor injury can result in an FOP flare that will potentially permanently restrict movement to the injured area.
Jack silently accepted his diagnosis and pursued a hobby of wildlife photography. This hobby has grown into a passion with some magnificent results. Jack would love nothing more than for you to enjoy his photographs of wildlife in their natural habitat. So please join us in following Jack’s magnificent life journey as he seeks to defeat the restrictions of FOP.
All photos on Jack's Movement web page are photos that Jack has taken (other then the ones that he is in 😃)
Stepping Stones to a cure - advocate, create awareness and raise funds for research to find a cure for FOP. An effective FOP treatment is a genuine possibility that is being pushed by dedicated FOP hero's, researches and organizations. Our mission is to keep Jack and all FOP hero's moving
To Donate please use the link below. All donations go directly to FOP Australia and donations over $2 are tax deductible.
www.givenow.com.au/crowdraiser/public/birthdayfundraiserforfopaustralia
Fibrodysplasia Ossificans Progressiva (FOP) is an extremely rare and disabling genetic condition causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement. It is a progressive disease, and there is currently no treatment or cure. FOP has no ethnic or religious pattern. It does not affect a person’s intelligence.
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